Activities Report 2021
Public Health Rotterdam

QVS database

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In 2021, a long-awaited wish of patients was fulfilled: the creation of the QVS database. A national database in which medical data of patients with Q fever fatigue syndrome (QVS and QVS-similar) are collected and analyzed for four years. The database gives the patient insight into their own clinical picture, while at the same time creating a collective image of the whole patient group. An important study because much is still unknown about QVS.
Erasmus MC, together with Q-support and the Q-uestion foundation, set up the research for the QVS database in 2021. The aim is to gain insight into the long-term consequences, the expectations of the patient and (quality of) the care received. The hope is that the QVS database will improve care and support for QVS patients in the short and long term. And that it leads to appropriate care and tailor-made therapy.

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Impact Q-fever on daily life